My dad suffered a major stroke in February. After 3 weeks of rehab Medicare (don’t get me started with them) decided he had reached a “benchmark” and could no longer stay. My sister found an assisted living residence and off my father went. That should have been the end of the story, but it was just the beginning!
Now the place that accepted my dad is new (just 8 years old), has a friendly staff, decent food, and a nice bucolic setting, so I won’t critize them on that front. That being said, here comes the bad part.
My dad’s suite was fairly nice—a large, sunny bedroom, huge bath (no tub, but a shower you can roll a wheelchair into), nice sitting room with a kitchenette (no stove, under the counter fridge, small sink). It also came UNFURNISHED, so the first thing I had to do was get furniture: a new bed (his queensize bed was to large), a small snuggle chair (that opens into a single bed, just in case his girlfriend decided to come & stay with him for no more than a week), a shower seat (Medicare wouldn’t pay for it), a raised commode, shower curtain, linens, toilet paper, all personal care products, etc. Now that might not bother some people, but for $3810 per month, I felt that the LEAST they could do was supply toilet paper!!!!!
Since my dad suffered mobility problems due to his stroke, he needed assistance—custodial care as it’s termed. Ok fine, I have no problem with that EXCEPT everything is extra. Need to be wheeled to the dining room 3 times a day? That cost $450/month. Need to have your medications handed to you? That’s $300 per month. Laundry? That’s $100/month!!! I can go on, but you get my drift. Since my dad isn’t that bad, his custodial care only cost an extra $1400 per month. So now he’s paying $5210 PER MONTH!!!!!
Still doesn’t sound bad until you realize that after all your savings are used up, you’re no longer able to stay in assisted living (unless you have long term care insurance which is expensive for most people). So what do they do with you (FYI medicare WON’T PAY for assisted living) when all your savings are used up? Assisted living residences won’t use the term, but I sure will—they DUMP YOU. Send you to whatever nursing home is available (could be a good home or a hell hole—you don’t have much choice, it’s based on who has the available bed).
Now being disabled myself, I know what it’s like to live in a rehab setting (I was in the hospital for 4 years). I also know that no matter how something is packaged, an institution is an instituiton. Want to sleep late—sorry, no can do, breakfast is at 8AM, so the aides start getting people up at 5AM (you have to, considering the aides may have 10 people to get up & dressed before 8). After breakfast it’s back to their rooms (seems to me that most of the people there looked lost, bored, sad, etc & used the TV to keep them company). Now I’m not saying there were no activities because they did have things every day for the “residents” to do—-chair exercises, bingo, games, etc., but these activities lasted no more than 1 hour, so you might get 2-3 hours of entertainment for the entire day.
It also broke my heart that there were so few visitors. I saw my dad at least 4 times a week. I became friendly with the other “residents” and believe me when I say, it would bring tears to my eyes when I would leave, because these people would be asking me to stay longer, to visit with them, to talk to them. Now I know that people have to work & don’t have a lot of time for visiting, but give me a break. Saturdays & Sundays were just as empty as the weekdays!
The director I talked to before my dad was moved there made this place sound like heaven on earth. Sadly I feel that that was a total LIE!!! For all it’s newness, to me it’s still an institution—a nursing home for people who have MONEY and are not so severly disabled that they can fend for themselves.
My dad is home now—-happy to be in familiar surroundings. He can’t live alone anymore, so my husband and I are moving in. I’ve hired a fabulous aide who comes in for 3 to 4 hours in the morning, and an aide that comes in for an hour at night. Staying in assisted living would have cost $62K/year. Having aides will cost about $20K/year. Had he’d stayed, his savings would have been exhausted in 3 years and he would have been sent packing. Dad’s got a strong constitution, hopefully he’ll be around to see 100, but if he doesn’t, at least he’s home and happy.